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Movers and Shakers: a podcast about life with Parkinson's

Podot

132 episodes

Movers and Shakers finds six friends – Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn, and Jeremy Paxman – gathered in a Notting Hill pub to discuss the realities of life with Parkinson's. And maybe find a few silver linings!

More about the show

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Episodes page 1 of 3

  1. Preventing Falls

    · 32 min · S9 E6

    We've spoken about falls, so we thought we'd find out how to prevent them. This week, we're joined by the physiotherapist Niamh Buttle, who is also the co-founder of Wobble, an app designed to improve mobility,…

  2. Drinking, Drugs and Genes

    · 31 min · S9 E5

    This week we're offering listeners a bit of a 'potpourri' episode, featuring updates from each of us, as well as our loyal Northern Correspondent, Christopher Lambton. We're focussing on drinking, drugs and genes,…

  3. Osteoporosis

    · 30 min · S9 E4

    Do you have brittle bones? This week we're talking about osteoporosis, the health condition that weakens bones and makes sufferers more prone to breaks. We've all got our own experiences to share, but to give us expert…

  4. Voice Messages

    · 26 min · S9 E3

    Voice Messages - that's the name of our upcoming webinar series. Why did we give it that name? Well, this year we're campaigning for the Parky Voice, the lesser known symptom of Parkinson's disease that up to 90% of us…

  5. Perception

    · 27 min · S9 E2

    Do we stoop? Does our facial expression change? Do we sound different? And if we do do any of those things, have we, ourselves, even realised? We spoke to four(!) experts to find out more about perception, including…

  6. Parky Books

    · 35 min · S9 E1

    The Movers & Shakers are back for another season of informative, inspiring and possibly even entertaining conversations. To kick off season 9, we're speaking to three Parky authors, who have written about...…

  7. Parky Profiles: Andy Cassy, the Parky Brit Taking Part in a Landmark Trial for a Cure

    · 26 min

    This week on Parky Profiles, we're speaking to Andy Cassy, friend of the podcast, fellow Parky ping-pong player, and the only Brit to take part in what has been described as 'a landmark first-in-human clinical trial'…

  8. Parky Profiles: Christopher Lambton, Former Voice of the BBC & our 'Northern Correspondent'

    · 26 min

    This week on Parky Profiles, we're speaking to Christopher Lambton, a former voice of the BBC. One of our most dedicated fans, Christopher has listened to every Movers & Shakers episode, and, having found our…

  9. Parky Profiles: Lloyd Taylor, Cyclist, Author & Campaigner for Parkinson's

    · 27 min

    This month we’re interviewing a handful of fascinating people as part of our summer ‘Parky Profiles’ series. The Parky author, adventurer and cyclist, Lloyd Taylor joins us this week to talk about the journey to…

  10. Parky Profiles: Roger Barker, Cambridge Professor of Clinical Neuroscience

    · 31 min

    This month we’re interviewing a handful of fascinating people as part of our summer ‘Parky Profiles’ series. This week we're joined by renowned academic and researcher, Roger Barker. Roger is professor of clinical…

  11. Parky Profiles: Deborah Brooks, CEO of the Michael J. Fox Foundation

    · 33 min

    This month we’re interviewing a handful of fascinating people as part of our summer ‘Parky Profiles’ series. It’s hard to ignore the activities of The Michael J. Fox Foundation. Since its founding in 2000, it has…

  12. Singing

    · 34 min · S8 E10

    This year we're campaigning for the voice, and it would be remiss of us not to put a spotlight on the power of raising one's voice in song for people with Parkinson's! For our final episode of season 8 of Movers &…

  13. When Should We Start on Drugs?

    · 33 min · S8 E9

    When is the right time to start taking Parkinson's drugs? Having put the question to the Movers & Shakers Facebook group, we had a range of responses from those who didn't take Levodopa (the widely prescribed and most…

  14. My Parent Has Parkinson's: what should I know?

    · 32 min · S8 E8

    We spend most of out time talking about how Parkinson’s impacts us Parkies, but we don’t often speak about the experience of those family members, particularly the children, who live with it too. One of our guests for…

  15. Pain

    · 26 min · S8 E7

    Does Parkinson's cause pain? Can a non-Parkinson's pain be aggravated by the disease? Or is just our old age? Dr Susan Duty, Professor in Pharmacology and Neuroscience at King's College London, joins us this week to…

  16. Brain Bank

    · 28 min · S8 E6

    We can't quite believe it either but this week's episode was recorded at the UCL Brain Bank headed by Consultant Neurologist Tom Warner (also notably, Gillian's neurologist!). Thanks to expert guidance from Consultant…

  17. Walking Football

    · 24 min · S8 E5

    The Movers & Shakers are back in the pub to talk walking football. We're big fans of activities that help slow down the progression of Parkinson's Disease, particularly walking football; it may even rival ping pong…

  18. Risky Drugs

    · 40 min · S8 E4

    The BBC Radio 4 investigative programme 'Impulsive' shocked listeners across the world. Aired at the beginning of the year, 'Impulsive' revealed the devastating effects that the readily prescribed Parkinson's drugs,…

  19. The World Parkinson's Congress

    · 37 min · S8 E3

    Live from Phoenix, Arizona, for the World Parkinson's Congress 2026; it doesn't get much better than that if you ask us. We all took turns speaking to Parkinson's experts, whether that be on dancing, singing, or even…

  20. The Chelsea Flower Show

    · 35 min · S8 E2

    We're at the RHS Chelsea Flower Show! This year's event has a special focus on Parkinson's with the newly named Parkinson's Resilience Rose and the beautifully designed Parkinson's UK show garden. Unsurprisingly, the…

  21. Try-Athlon 2026

    · 18 min · S8 E1

    To kick off our eighth season of Movers & Shakers, we're reporting to you from this year's Try-Athlon at the Twickenham Stoop. Organised by the Sports Parkinson's team, the annual event gathers together Parkies from…

  22. World Parkinson's Day 2026: Speak Out!

    · 13 min

    This year for our special World Parkinson's Day episode, we're coming to you live from Sutton (Mark's local branch) where they've arranged a day of amazing events to raise awareness of PD, with a particular focus. The…

  23. Positivity

    · 21 min · S7 E10

    For the final episode of this seventh season of Movers and Shakers, we're looking on the bright side of life. Can positivity actually improve your condition? Or does it mask the hardship of life with PD? And what on…

  24. Driving

    · 31 min · S7 E9

    Driving is something that people often take for granted – right up until they can't do it. With a Parkinson's diagnosis comes a lot of insecurity about being behind the wheel. When do you know if it's time to stop? How…

  25. Oral Health

    · 31 min · S7 E8

    We're sinking our teeth into another important issue this week, as we look at oral health and the role that it might play in Parkinson's. The Movers and Shakers are joined at the pub – where Paul is caught, live on…

  26. The Dopamine Debate

    · 34 min · S7 E7

    This week we're doing something a little bit different on Movers & Shakers. We're joined in the pub by Dr Jonathan Sackner-Bernstein, a distinguised American cardiologist with a controversial idea: that Parkinson's…

  27. Hallucinations

    · 34 min · S7 E6

    One of the strangest symptoms of Parkinson's is the sudden appearance of unexplained figures – whether that's a cat or a small child, a barking dog or a fully clad Venetian – in your environment. There hallucinations…

  28. Paraquat

    · 29 min · S7 E5

    This week we're returning to one of the most contentious subjects in Parkinson's world: what causes the condition? Research has increasingly focused on the role of pesticides – particularly one called Paraquat – which…

  29. The 2026 Campaign

    · 32 min · S7 E4

    Last year was a landmark year for the Movers & Shakers team, as our Parky Charter project reached 100,000 petition signatories and generated a parliamentary debate. So how will we be following it up in 2026? To debate…

  30. Exercise: the evidence

    · 32 min · S7 E3

    If certain windsurfing former Judges are to be believed, there's nothing quite like a bout of vigorous exercise for easing the symptoms of Parkinson's. But does the medical evidence support this? Cramped into their…

  31. Freezing

    · 30 min · S7 E2

    Freezing is one of PD's most unusual symptoms. Whether it's a threshold, a zebra crossing or just getting out of bed, the sudden inability to move can strike at any moment. Why does it happen? And is there anything…

  32. Parkinson's: the Sitcom

    · 28 min · S7 E1

    After our festive break, the Movers & Shakers are back in the Notting Hill pub with glad tidings for the new year. Gillian and the Judge have been sunning themselves (in Antigua and Australia, respectively), Rory has…

  33. 2025: The Year in Review

    · 27 min · S6 E13

    It's the end of another year – and what a year it's been! From the Big Sing on World Parkinson's Day through the Parky Petition campaign and getting our debate in Parliament, 2025 has been a stellar year for the Movers…

  34. Parkinson's in Africa

    · 32 min · S6 E12

    From our little corner of the Notting Hill pub, it can be hard to see what life is like for people with Parkinson's across the rest of the UK – let alone around the world! Today, however, we're talking about…

  35. The Mega Trial

    · 27 min · S6 E11

    How do you run clinical trials that maximise the efficiency for patients, clinicians and drugs developers? That's the challenge being addressed by world's largest ever clinical trial of Parkinson's medications. To…

  36. The Parky Charter Debate

    · 21 min · S6 E10

    So, after two long years of campaigning, this week the Parky Charter – our set of demands for the government – had its moment in Parliament. With the Movers & Shakers and other supporters in attendance, MPs debated the…

  37. The Funding Machine

    · 32 min · S6 E9

    This week, the Movers & Shakers are joined in the pub by our friends from Cure Parkinson's and Parkinson's UK. They are two of the charities working so hard to find ways of dealing with Parkinson's and improving the…

  38. What Causes Depression?

    · 30 min · S6 E8

    We try not to shy away from the less cheerful topics here on Movers & Shakers, and this week we're once again looking at depression. We're joined in the pub by a top expert – Professor Dag Aarsland – to look at how…

  39. Light

    · 31 min · S6 E7

    Let there be light! Well, certain types of light, at least. That's what we're discussing down at the Movers and Shakers Arms today, where the gang are joined by Professor Glen Jeffery, an expert in the use of light…

  40. Local Heroes ft. the Bexhill Superstars!

    · 27 min · S6 E6

    Over the summer months, we at Movers & Shakers HQ ran a competition: the local group who acquired the most signatures towards the Parky Charter petition would get their own special episode. And here it is, with the…

  41. Falls

    · 37 min · S6 E5

    There are few great anxiety inducers for Parkies than the prospect of having a fall. Squeezed into the Notting Hill pub – having dodged bustling waiters, stray chair legs and a labyrinthine tangle of cables – the…

  42. Cannabis

    · 33 min · S6 E4

    On today's Movers & Shakers, we're putting down our pints and rolling a joint talking about how cannabis could be an important part of Parkinson's treatment. Subject to stigma over its use, have we been ignoring the…

  43. Can You Hide Your Parkinson's?

    · 31 min · S6 E3

    Can you hide your Parkinson's? And should you? Those are the questions we're tackling today, as we're joined in the pub by Rob Burley, a former BBC producer and author of Why Is This Lying Bastard Lying to Me?, a book…

  44. Remembering John Stapleton

    · 29 min

    This week, we're issuing a special episode to remember the life of John Stapleton, who died last week. We were privileged to have John join us in the pub earlier this year to discuss his life, career and PD journey.…

  45. Parkinsonism

    · 34 min · S6 E2

    Parkinsonism is the term used to refer to a group of conditions – like multiple system atrophy (MSA), progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and Lewy Body Dementia – which resemble…

  46. The Produodopa Pump

    · 39 min · S6 E1

    The Movers and Shakers are back in the pub after a relaxing summer. Oh, who are we kidding? It's been a frantic struggle to get the #ParkyCharter petition to 100k signatories but we – which is to say: you – did it! Now…

  47. Parky Profiles: Jagdeep Aujla

    · 27 min

    Our final profile of this summer series has a very particular set of skills... Jagdeep Aujla is a London-born karate champion and martial arts enthusiast who, since his Parkinson's diagnosis, has established the…

  48. Parky Profiles: Alison Anderson

    · 18 min

    Our profile this week is of a Parky on a mission: Alison Anderson who is, as you listen to this episode, cycling across America to raise money for Cure Parkinson's. This isn't Alison's first marathon bike ride, she's…

  49. The Parky Petition Hits 100,000!

    · 17 min

    This Wednesday, our titanic campaign to reach 100,000 signatures on the Parky Charter petition reached its climax. After a marathon effort involving Gillian commandeering EasyJet planes, the Judge haranguing…

  50. Parky Profiles: John Caulcutt

    · 21 min

    In a long and varied career, John Caulcutt has worn many hats: rock musician, stockbroker, marketing man, bobsled champion, fundraising extraordinaire, and, since 2019, parky. He joins us for this, the latest in our…

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